Sunday, August 02, 2009

Next chapter - bone marrow transplant

We have moved from a sustained remission of 6 months to an upcoming mini allogenic bone marrow transplant from an unrelated donor. The donor is a 20 year old international male. We will not be told any more information and can't contact him directly for a minimum of 2 years. We were blessed as this was a 10 out of 10 HLA type match! All of our 3 expert physicians advised us this is the route to take which can be potentially curative. According to them this is our window of opportunity, the door has been opened and we have to walk through it. Waiting would be taking a gamble that the disease would re-emerge and may not be able to be put back into remission with a second round of Campath.

Having read about all the potential side effects, and seeing how well my husband looks right now, it is hard to think about what the coming weeks and even first year will bring. We have faith in God that this is our cross to bear right now and we will emerge in a better place with respect to the T-PLL in the future.

Lots of pre-admission testing, house preparations and the like are making my head spin about now. We have 3 weeks to go before admission and chemo/radiation begin. We are told to expect an average hospital stay of about 3 and a half weeks (if all goes well, longer if not) and a return to a 'new normal' in a year. Day 100 is a key milestone along the way.

I would enjoy hearing from anyone else out there who has been through the min-transplant as I know I will be going through some hell in the weeks to come watching the love of my life going through all this.